Keaton Wayne Stevens Surgeries.
Update with pictures! Keaton had a successful surgery to reverse the colostomy and realign the intestine and is now number 1 at going number 2! He's a solid 20lbs eating 6-8 ozs every few hours! Thankfully these complications hasnt slowed the little man down a bit when it comes to chow time. Unfortunately, all of these trips being made across the state for little keater bear has caused a real financial strain on our family. Karrson (dad) has been missing quite a bit of time at work making the 6-8 hour drive with Keaton to his appointments as well as full weeks for the 4 major surgeries. We are currently applying for WIC but like everything else in North Dakota it is an extremely slow process. For example, Keatons social worker has been changed 3 times in 4 months. We also got charged $2500 for his colostomy surgery which medicaid did not cover. Another of the minor issues we have is his ureters are enlarged causing him to urine more than a normal baby so we're burning through diapers, we're still needing help for upcoming appointments and for our day to day things Like Formula, Diapers, water wipes, care products for his severe diaper rash, and wound from surgery, since he has never been able to poop normal in 4 months the acid from the BM is literally making his bottom bleed so we have made ER trips just to get special medicine to help his bottom. Costing us 70$ a prescription which medicaid is also not paying for because it's special made by a Pharmacy it has been a real stress and anything donated is purely for Keaton and we appreciate any and every donation so far thank you everyone so much! Sending love from Keatons family! :)
Keaton W. Stevens was born 4-12-17 and since his birth it's been a great journey for us already, his birth went well and he seemed all fine in the hospital but not even a day after he was born we started noticing issues. That's where we started our hospital journey, he had 4 ER visits in the first week he was born to the Williston hospital and the hospital kept sending us home. After being set home the first time we looked harder into what it could be since the hospital wasn't much help, and we noticed my son didn't have an anus, at that point we made 3 more ER trips because he wasn't able to go to the bathroom anymore, he would at that point scream until he almost passed out trying to get his waste out, once again the ER sent us home, told me my child was colicky and that he was lactose when really he had no anus and I pointed it out clear as day after a month of him building up with BM because they neglected him, we made our first 4 hour trip to Bismarck, where they finally looked into my child and did an x-ray and dignosed his disformity as an Imperforated Anus with a Fistula, During the x-ray they found a tube (The Fistula) that grew under his sack and they immediately scheduled for his first surgery, they put him under anesthesia at a little over a month old and used a tool to open up the tube so that he could get some of the BM out until we were able to find a Pediatric Surgeon that felt comfortable doing his surgery, after going home the dilation they did to the Fistula lasted for maybe 4 days then it closed, after that we immediately made our 2nd trip to Bismarck where they did another dilation to the Fistula but this time it wasn't under anesthesia it was just in the ER with some lube, and watching them do this to my son was horrid his bottom would bleed and he would scream and I couldn't help but break down for my son.. After the second time we got in touch with a doctor in Fargo, 7 hours away from home that felt comfortable doing the surgery so not even 3 days after the second trip we were sent to Fargo,ND and he was immediately hospitalized at the Sanford Childrens Hospital where his journey for surgeries started he was hospitalized for 6 days where he wasn't allowed to eat and just had tubes draining all of the waste that was built up inside him, after all the waste was sucked out he had his first Major surgery to have his bottom reconstructed, the Fistula closed up, and the anus put in the correct place, they also found that he has an enlarged ureter and he will have his spine watched over time to make sure he wont need spinal surgery, after this surgery he was still not allowed to eat and he had a tube in his nose that would suck everything out of his stomach so he wouldn't poop, after we were released from the hospital in Fargo we went home for one day and his surgery opened up, we immediately a day later went back to Fargo, ND where he was hospitalized again for 5 days and had reconstructive surgery for a second time, and at this point they had no choice but to give him surgery for a Colostomy bag, because the chance of infection and his bottom opening up again was high, so doing the colostomy was safest for him. After these surgeries he was able to start eating in small portions to make sure all the surgeries went well and that the colostomy was operating correctly after that visit we were able to take him home and start the healing process of his surgeries and that's where I had to start daily dilations to his bottom twice a day and let me say this, doing this to my son even for medical reasons was heartbreaking for me.. On Tuesday July 11th we made our third 7 hour trip to Fargo again for his follow up with the surgeries and his colostomy, where I was given bigger dilation sticks and was asked to do 2 sizes twice a day for the next month so he can have his reverse surgery which is scheduled for, August 11th, 2017 this disformity was supposed to be fixed at birth and he was neglected by the hospital until we made it to Sanford Childrens in Fargo, now he has future surgeries to come and as a mother now having a baby with special needs it's been very hard to cover this bills, and to find someone medically qualified to care for him so I can go back to work it's definitely been hard for my family. So any donation will help and will be whole heartedly appreciated so I can make sure my son gets the best care he needs.. Thank you for reading this and hearing my son Keatons story.