Help for little Charlotte

$39,436 of $100,000 goal

Raised by 459 people in 30 months
On 16/6/16 my son went to wake his 7 year old daughter Charlotte for school. Charlotte was unresponsive, blue in colour and her eyes were rolled to the side of her head. This is every parents nightmare. Charlotte had apparently suffered a severe seizure but the cause was unknown. In September last year after months of tests, Charlotte had to have a biopsy to try and determine why this occurred. Charlotte now has been diagnosed with a very rare brain tumour. After many visits to the RCH the doctors are going try and shrink the tumour with a trial based chemotherapy which will begin next week for approximately 12 months. Periodic MRIs will determine whether treatment is successful and thus determines whether the doctors can attempt partial or total resection of the tumour. If this occurs it will leave Charlotte with a deficit on the left hand side of her body. Extensive physio will help but Charlotte will have to wear a leg brace and her fine motor skills will be affected. Brendan and Nicole have 2 other little girls, Mackenzie 5 and Isabelle 3. Brendan is a very hard working dad but unfortunately he works for himself and when he doesn't work he doesn't get paid. Unfortunately they live 70 klms from the hospital so the cost of travel every week is expensive . My wish is to raise enough money so Brendan and Nicole can concentrate on spending quality time with their family and not have to worry about bills, travel expenses, house payments etc during this next 2 year battle.
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Pure innocence ❤️❤️
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On Thursday 24th May, Brendan and Nicole were given the worst news any parent could possibly hear. Charlotte’s tumour was progressing at a rapid rate and they needed to make a decision on whether to give Charlotte an operation to remove her tumour leaving her paralysed down the left hand side of her body or to give her some quality of life and try radiation and chemo. The prognosis of leaving the tumour was not an option they were prepared for so decided to allow doctors to do a craniotomy. On Tuesday 28th May Charlotte underwent a mammoth 12 hour surgery. As I sat with Brendan and Nicole the anxiety and pain was more than they could bear. Charlotte came out of theatre at 10.30 and at first sight of her they broke down in tears. The relief of seeing her was so emotional after a day of uncertainty. The last couple of days have been the hardest days I’ve ever had to endure so I can can only imagine what Brendan and Nicole have been going through. Watching Charlotte in so much pain, coming to terms with being paralysed, having to wear a nappy again, having a feeding tube, being poked and prodded by everyone is heart wrenching. Brendan and Nicole have sat by her bedside constantly trying to comfort her through these difficult days. Charlotte will begin radiation and chemo in about 2 weeks time as a prevention of cancer cells returning. Unfortunately radiation will be done on her total brain which will kill off her good brain cells slowing up any progress with recovery from her paralysis. Charlotte will be in hospital for approximately 3 months which will impact heavily on the whole family financially and emotionally. Thankyou so much to everyone for your help in allowing Brendan and Nicole the ability to be able to spend this quality time with Charlotte.
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Hi MPV Members.

My names Nicole, I live in Rosebud & I'm a mum to 3 girls, 9, 7, 4 & a partner to Brendan.

My 9 year old daughter Charlotte was diagnosed with a brain tumour back in October 2016. Our warning was a Grand Mal seizure on the 16th of June 2016. A day of great uncertainty as we watched our daughter lay unconscious, grey, foaming from the mouth and fitting before us.
She has undergone MRI's, EEG's, lumber puncture, infectious disease testing, before the biospy in Sept 16.
Diagnosis of a rare brain tumour called an Angiocentric Glioma came back. A low grade BT. IF it was small enough to remove it would have come out and this journey may have just been a series of follow up MRI's. Her tumour was too big, located from her parietal lobe - frontal lobe. And would leave her with deficits as it was in areas containing her motor/sensory pathways, then said to be inoperable.
More MRI's, then our Chemotherapy path followed. Jan 17 her port was installed and the week later we began her protocol. 1 x weekly for 10 weeks, 1x weekly 3 weeks on and 3 weeks off till October, when it stopped because it wasnt working. In that time she had blood and platelet transfusions & numerous trips to emergency for temperatures, neutropenia and another couple of seizures. With even a few admissions to the cancer ward in the Royal Children's Hospital, where she is being treated.
November 24, 2017.... a brain resection, her tumour had changed appearance, it had grown nodules. Sent off to Boston, not alot of info came back and we were unaware what this demon was.
2018 has been a little quieter, Feb MRI, April PET MRI. More changes in tumour. And told she had been diagnosed with a High Grade Glioma unrecognised by WHO. On May 3rd, 2 days before Charlottes 9th birthday, she underwent another resection. 2 weeks later we were set to begin 6 weeks daily Radiation and an oral chemotherapy as her BT was now a grade 4 & looking more like a Glioblastoma Multiforme. A hideously deadly CANCER. Charlotte had one dose of her Radiation at Peter Mac in Melb & on the way home had another seizure. Taken by ambulance from the side of the FWY back to RCH.... huge Grand Mal seizure that went for almost an hour, another small one, CT, MRI..... Our whirlwind journey begins again.
THIS IS OUR NEXT STEP, the step everyone has been trying to avoid.
Charlotte will be undergoing her next surgery on Tuesday 29 May. Our surgeon is preserving her frontal lobe and an area at the back, optic?.
To give her any chance at some type of survival, she will wake up from surgery left side paralysed (torso and all), droopy faced, loss of peripheral vision, be tube fed, cathetered and feeling extremely poorly. We will be in hosptial for the good part of 3 months. She will begin radiation and chemo on her good side of brain, which could make relearning things a little harder. Rehabilitation will come in when she is stable and feeling better.

The hardest decision made to date, no one should have to go through this heartache.
She will still be our crazy fun loving Charlotte, but will be functionally different.

Im so scared of whats to come and how we are going to cope mentally and financially. Our family is going to have to be separated for some time while we focus of Charlotte. I cant bare to think about not seeing my other girls everyday and the emotions that will come from me not being around with their big sister. My partner will have limited days to work to provide for his family as he too will have to spend time up at the hospital helping and learning how to help our girl.

If anyone can please help in anyway by contributing to our GOfundme page. We would be forever grateful. Anyone that knows me, will know how BIG this is for me to ask for help.. It's not something I'm very good at.

Thank you for reading & your time. Nicole X

https://www.gofundme.com/help-for-little-charlotte

#teamCharlotte #braintumour #findacure #anythingtohaveyou #childhoodcancer #fucancer
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Firstly Thankyou so much for all your support for by beautiful family. It means so much to all of us. Charlotte was operated on in Nov to do a partial resection of her brain to hopefully slow up her tumour from entering her motor pathways. At that stage her tumour was an angiocentric glioma variable. She had an MRI post surgery as a base line then again in Feb to determine changes to her tumour. Feb scan showed some cellular change. Pet scan was had on April 19th which showed a drastic change to her tumour. We met with her oncologist and neurosurgeon on Mon where they told us her tumour had turned high grade and was extremely close to her motor pathways. They suggested immediate surgery to remove the nodule followed by radiation then possible total resection of the right hand side of the brain. Unfortunately the news we received last night was not good and the tumour has progressed rapidly. It is travelling like waves through the brain and has encroached further than first thought. Radiation will begin in 2 weeks time with regular MRI’s to see if cancer ends have fused. If there is any doubt, total resection will occur immediately. This will leave Charlotte with permanent loss to the left hand side of her body. It still doesn’t leave her out of the woods as the tumour being now malignant can spread to the other side of her brain. Charlotte is in the best hands possible and the doctors are trying everything possible. Her tumour was sent to Monash immediately after removal yesterday where they grow a duplicate 3D tumour and try different drugs for any sort of reaction. Also her tumour is placed into 100 mice and again different drugs are tried to see if there is any evidence of change. Immunotherapy has been spoken about and is also one of treatments they could possibly try. Charlotte ‘s tumour is unrecognisable by WHO and has never been seen anywhere in the world making treatment even more difficult. Thankyou all so much again for your support, I cannot Thankyou all enough.
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Read a Previous Update
Tracey Brown
27 months ago
2
2

I hope she gets all the help she needs as do the family. Be sure to contact central coast kids in need also as they can help too:) xx

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Nicole Morrow
30 months ago
2
2

Your generosity towards our beautiful Charlotte and helping towards her tumour journey is beyond anything i ever imagined. We will always be forever grateful. THANK YOU ❤

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Tracey Smith
13 months ago
1
1

Sending preyers, every parents worst nightmare, im so sorry this is happening... I dont have the money right now to donate but i do have time, and skills... i can babysit or clean (ocd style clean) wash clothes) whatever you want or need.. i have working with childrens check and police check...

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Anei
13 months ago
1
1

I wish you a speedy recovery Charlotte

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Marty Gebert
13 months ago
1
1

Span and family our healing thoughts are with you guys what devasting news. All the best for the future ahead and no doubt bianca will keep us updated x

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Katrina Pastourmoglou
13 months ago
1
1

My heart breaks for your family praying for a cure x

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Bec Ramsay
14 months ago
1
1

Is the tumour DIPG? I have been involved with many children with these tumours. I hope your little one improves quickly xx

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$39,436 of $100,000 goal

Raised by 459 people in 30 months
Created January 14, 2017
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BC
$710
Boneo Tennis Club
11 months ago
1
1

Sending all our support and best wishes from everyone at Boneo Tennis Club

$50
Teressa Linton
12 months ago
1
1

All the best gorgeous girl.

MV
$20
michelle Voce
12 months ago
2
2

Friends with mummakazz Good luck to you all

$25
Olivia de Sousa-Ferres
12 months ago
1
1
$50
Robert & Liz Smalley
12 months ago
2
2

Wishing you all the best, Robert and Liz Smalley

TM
$300
Tini McKimm
12 months ago
2
2
PC
$50
Pauline Cosby
12 months ago
2
2

Prayers for Charlotte and her family.

MC
$50
Moorooduc Junior football club
12 months ago
1
1

We wish you and your family all the very best. You are such a brave little girl. ♥️♥️

MH
$30
Merril Hutchins
12 months ago
2
2
DS
$30
Danni Sims
12 months ago
2
2

Kazz shaving her head for Charlotte xo

Tracey Brown
27 months ago
2
2

I hope she gets all the help she needs as do the family. Be sure to contact central coast kids in need also as they can help too:) xx

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Nicole Morrow
30 months ago
2
2

Your generosity towards our beautiful Charlotte and helping towards her tumour journey is beyond anything i ever imagined. We will always be forever grateful. THANK YOU ❤

+ Read More
Tracey Smith
13 months ago
1
1

Sending preyers, every parents worst nightmare, im so sorry this is happening... I dont have the money right now to donate but i do have time, and skills... i can babysit or clean (ocd style clean) wash clothes) whatever you want or need.. i have working with childrens check and police check...

+ Read More
Anei
13 months ago
1
1

I wish you a speedy recovery Charlotte

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Marty Gebert
13 months ago
1
1

Span and family our healing thoughts are with you guys what devasting news. All the best for the future ahead and no doubt bianca will keep us updated x

+ Read More
Katrina Pastourmoglou
13 months ago
1
1

My heart breaks for your family praying for a cure x

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Bec Ramsay
14 months ago
1
1

Is the tumour DIPG? I have been involved with many children with these tumours. I hope your little one improves quickly xx

+ Read More
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