My name is Travis McCarty. When I first learnt about the Woronka family's story, I knew I had to help in some way.
It costs around $60, 000 a year to care for someone who has DMD. For Rebekah and Nick, they begin the heartbreaking nightmare of trying to manage both the finances and mental strength to look after their amazing boys.
On Saturday the 12th of December 2020, I will embark on a 100km journey in 24 hours to raise money for them. Please help this cause by supporting my mission to help raise money to assist this beautiful family in the difficult times ahead.
The Woronka Family's Heartbreaking Story- Rebekah Woronka
In 2019, Riley, Cooper and Logan were diagnosed with Duchenne Muscular Dystrophy (DMD). DMD is a progressive muscle wasting condition to which sadly there is no cure. By the time the boys reach their 12th birthday, it is likely that they will require wheelchairs.
It started when the boys were about 3. I took them to the GP after some concerns were raised from the childcare about the boys being slower than the other kids. The GP referred the boys to a specialist to look at their hips however the specialist had a quick look and said they were fine. A few years later the boys started school and the sport teacher had some concerns about the boys running and jumping. They could physically run and jump but again it wasn’t quite what the other kids were doing. By this point (age 6) their calves were also enlarged. I took them back to the GP, She looked at their calves and said they just genetically have big calves and not to worry. All of this just wasn’t sitting right with me. So I took them to an Osteopath to take a look and I’m just really lucky that she knew what she was doing because she referred them straight away to neurology at the Children’s hospital. The boys were then assessed and bloods were taken and it was confirmed that they have DMD. We then had to test Logan and go through it all over again and it was also confirmed that he had it as well.
The boys have officially received their first mobility scooters so we need to start thinking about an accessible van and a house they can call their own so we can customise and adapt to their ever changing needs as they encounter them. We have many difficult days ahead of us so the boys need stability of a house that we are never going to be asked to leave.
- Joanna Lawrence
- Joan Bucknell
- Jacqui Randall
- des nugent
Organizer and beneficiary
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