Hi, my name is Nathan, I am 30years old and I have a rare disease called Pelizaeus-Merzbacher Disease as well as Cerebral Palsy. This page has been created by my sister Danielle and my support team from Holistic Horizons Disability Support Services Queensland.
My disease is an inherited condition that reduces neurological function involving the brain and spinal cord (central nervous system) that primarily affects males.
I started walking late in my development, which only lasted a few years until I was confined to a wheel chair for the rest of my life as the Cerebral Palsy took hold.
I am able to stand on my legs with the assistance of a walker for a very short period of time however my leg muscles are very stiff and unable to bend easily. I live with constant abdominal pain due to a slow functioning digestive system.
My father has recently gone through cancer and during the months of my treatment, I have had to have a place to live and be cared for 24/7. This is extremely costly and made me realise that one of my goals is to buy my own house to live in for my future for when my dad is no longer able to care for me.
I have had a life long goal to ride a long distance on my hand cycle. I begun training for this, under the careful guidance of my support worker Matt. I've been steadily getting stronger every week, my frame of mind improving, and positivity growing as I get closer to my big Ride.
My hope is to ride from Noosa to Redcliffe over a four or five day period in March 2021.
I want to raise all the money I can and donate some of it for research to find a cure for the disease. I also want to put a big portion of the funds aside to try buy my own home one day, so that I can feel independent living for myself.
I want to raise more awareness for my disease.
I want to inspire people to never give up, no matter what challenges are thrown at them in life.
I thank you all so much for anyone who supports me in this exciting journey bringing my wishes true by achieving this big ride.
"WHEELS ARE MY LIFE AND WHEELS GIVE ME FREEDOM"
- Dave Weekes
- Dave Weekes
- Tomas Martschinke
Fundraising team: Nathan's Ride for Life (6)
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