my 7 years old boy “Hanish “ is severely ill and has been diagnosed with hereditary disease of heart muscle known as
“Cardiomyopathy “ and progressive neurological issues due to “Friedreich ataxia “ a rare genetic neurodegenerative movement disorder.
Doctors at “Perth children hospital “ have informed us that, his condition is critical and he requires immediate treatment for months and carry out further investigations.
further diagnosis revealed that he suffers from “cardiomyopathy “ and there is high risk of complications and the only feasible option would be Heart transplant.
Fortunately, he tolerated and responded to treatment very well and partially recorded from his heart ailment “Perth children “s hospital medical teams organising several therapies for him on a day to day basis and we are visiting hospital very often for his further studies.
In spite of their valuable effort for about a 2 years there are no further improvements in his neurological issues and he is unable to do is normal activity.
Further to this September 2020 he has undergone major “brain surgery”and is in the recovery stage.
With a typical age of onset between 5 to 6 years, he can’t be enrolled for ongoing research trials and vaccinations.
In the meanwhile Through “friedreich Ataxia “ support network’s, we came to hear about “CBC Health clinic “- Munich, Germany; who are successful in improving neurological conditions for patientss suffering with “Friedreich ataxia “ by providing them innovative cord blood infusions treatment.
we have consulted “Perth children “ hospital doctors and staff regarding the treatment and they have provided positive feedback saying this would provide optimal benefit to his present moderate condition, and it further restricts him to surpass in to advance stage of neuro disorders we have also contacted “CBC health clinic “ and submitted all require medical reports of “Hanish “ to enroll him for a special medical treatment in Munich Germany for 25/01/2021 until 27/01/2021; letter of invitation is duly enclosed here with.
We have heard quite a lot about “GOFUNDME” from the hospital doctors and other staff and would like to ask for all your assistance.
We sincerely seek financial help from you all for the treatment costs, which are beyond our affordability. We have tried all possible sources to arrange the money for the treatment, But the huge amount of “$100000” Hundred thousand dollars “ is beyond the reach as a single income earner and trade person, his condition is worsening day by day. “Go fund me” is our onlyand last ray of hope, your kind support can save this young life, and for that, we will be ever grateful, your prompt and decisive support is anticipated.
Arjuna & Aruna
- Lisa Wu
- BHAGAVAN MATUKUMILLI
- Grishma Patel
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