Cade was diagnosed with Congenital Heart Disease at our 20 weeks scan back in 2020. We were told that Cade had 2 heart defects - Transposition of the Great Arteries & a Ventricular septal defect. As the pregnancy went on we were told to prepare our selves for surgery afterbirth. A ONE OFF surgery that would correct the 2 heart defects he was presenting with.
Once Cade was born, we then found out that his heart was actually a little bit more complicated then they had originally thought as they then found that he had Severe Pulmonary Stenosis and ASD.
The Pulmonary Stenosis was both a blessing and a curse!! because of the PS, VSD & TGA Cades blood was actually able to mix and spread around his body in a way that generally supported his oxygen, health and growth. He was able to go without his surgery for months, living at home, growing and prospering into a wonderful, joyful, very social little boy. He was able to hit his milestones, gain more fat then anyone ever anticipated and be the beautiful missing piece to our family. We were told that due to his pulmonary stenosis his heart surgery would come with many challenges, many complications and far more risks then we had ever hoped for.
On the 15th of June 2021
Cade was prepped and ready to go into surgery at 8.15 to get his major heart surgery however once the surgeons got in and observed his heart they found that a major coronary artery was crossing over in a place where they had to make incisions on his heart because of this his entire surgery couldn’t take place due to the significant life threatening risk. As the incision had already been made to Cade’s chest and he needed some kind of intervention they decided to put a stent to open his pulmonary artery to help support his blood flow for another few months.. they are hoping this supports his oxygen levels and gets them back up to his original stats around 80. Unfortunately with his heart becoming more complicated and the surgery being one of the most risky heart surgeries they are hoping in another 6-12 months times to go in and have another look with the hope they can operate around that coronary artery that is in the way. Unfortunately there aren’t and won’t be any definite answers for Cades future outcome and surgeries. We aren’t and won’t be promised a long enriching life with our baby. But we are promised to get another 12 months to love, cherish and adore him.
As Cades major surgery is now being held off for another year or longer,
All donations are helping our family short and long term. As Cade isn’t able to go to day care and be around crowds due to the significant risk of becoming ill being readmitted to hospital. Our family is running tight off one income that can barely cover the weekly necessities needed for a family of 4… the stress is continuously growing as Cades disease becomes more complex and severe.
We are so grateful for everyone who has shown love to our baby & our family!
Daniel, Shelby, Skylah and Cade.
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